Sanofi Group Assoc Director/Director Gobal Patient Advocacy in Cambridge (U.S.), Massachusetts

Assoc Director/Director Gobal Patient Advocacy


Manager/Associate Director, Rare Diseases

Position Summary:

The Manager/Associate Director of advocacy reports to the Head, Patient Advocacy in Global Rare Diseases and is part of a team responsible for continuing and advancing Sanofi Genzyme’s pioneering patient advocacy function, ensuring strong, authentic, and transparent relationships with the patient communities we serve, and upholding the patient-centered culture of Sanofi Genzyme.

The Manager/Associate Director helps to build the strategy for our collaborations with patient advocacy groups globally, champions the patient perspective throughout our organization and develops innovative solutions and programs to meet the dynamic needs of the patient community.

Job Responsibilities:

  • Serve as global liaison for one or more disease communities; maintaining a broad, holistic approach to advocacy leader engagement across the portfolio and across regions.

o Develop relationships with patient advocates, advocacy group leaders, and other constituents to better understand the needs of specific populations and to be an internal champion for those populations.

o Partner with international patient organizations to support disease awareness, diagnosis, and educational initiatives along with other mutual objectives.

  • Integrate patient stories and the “patient voice” throughout the companyin meetings, activities, presentations, and programs.

  • Assume project management of one or more of the major global patient advocacy activities such as the Patient Advocacy Leadership Awards, Genzyme Rare Community website, Expression of Hope, and participate in the development of new initiatives.

  • Act as regional internal Rare Disease advocacy lead and point of contact for communications and outreach for assigned geographic area, such as Asia or Latin America.

  • Develop written communication materials and campaigns for the patient community.



  • Bachelor’s degree in social science, education, communications, or life sciences

  • Masters or doctorate in genetic counseling, social work, psychology or related field preferred.

  • Excellent interpersonal, oral and written English communication skills including strong presentation skills

  • Ability to relate and interact with a diverse group of individuals and develop rapport quickly

  • High comfort level in business as well as patient organization environment

  • Ability to work both independently and collaboratively.

  • 8 Years in non-profit, advocacy, or academic setting, or in advocacy/patient support in a pharmaceutical company.

International travel required, 10-15%

Job: Patient Advocacy

Primary Location: United States-Massachusetts-Cambridge (U.S.)

Job Posting: Aug 11, 2016, 10:29:25 PM

Job Type: Regular

Employee Status: Regular